Two months old
May 1, 2016
What a little snuggle bug he is! He loves being in your arms! Likes being in the carrier close to mom, is getting better with his carseat, loves to eat, enjoys his play gym, likes to look at the fan moving, watching his bother and sister is entertaining to him, he likes to be bounced when held, he likes his bum patted, baths aren't as horrible, has a lizard tongue- always going in and out.
Firsts:
First CF test, first time to the thrift store, went to TNT gymnastics, first time pooping out his bum, got his first mobile, first time nothing on his belly but a scar, first smiles, first diaper blow out, first time wearing shirts and pants, first time to the park, first time to church, first real bath, first time to the airport.
So thankful to be on the other side of his surgery and that things seem to be going well. What a joy it is to all be in our house under one roof. His brother and sister just love him to pieces.
What a little snuggle bug he is! He loves being in your arms! Likes being in the carrier close to mom, is getting better with his carseat, loves to eat, enjoys his play gym, likes to look at the fan moving, watching his bother and sister is entertaining to him, he likes to be bounced when held, he likes his bum patted, baths aren't as horrible, has a lizard tongue- always going in and out.
Firsts:
First CF test, first time to the thrift store, went to TNT gymnastics, first time pooping out his bum, got his first mobile, first time nothing on his belly but a scar, first smiles, first diaper blow out, first time wearing shirts and pants, first time to the park, first time to church, first real bath, first time to the airport.
So thankful to be on the other side of his surgery and that things seem to be going well. What a joy it is to all be in our house under one roof. His brother and sister just love him to pieces.
April 2 - gained weight again and weighed 7lbs 2.5oz, done getting electrolytes, feeds moved up to 70mLs.
April 3 - gained a little - now up to 7lbs 2.9oz,
April 4 - weighed 7lbs 1.6oz, had the Barum Enema procedure today where the dye goes up the bum to check and make sure all looks good with his colon, no concerns after seeing the results, Askegard is going to take a piece of the small intestines off as well as his appendix,
April 5 - weighs 7lbs 2.7oz - which was an ounce since yesterday, continues to eat well - every 3 hours, surgery was confirmed to be done on Monday, April 11, 2016.
April 6- gained over 2 ounces, now up to 7lbs 5oz, you had your sodium chloride test (sweat test) to test for CF, it didn't work, so it will have to be done again sometime, you came home today!!, we went to the thrift store.
April 7 - been eating well, we add to your feedings if you don't seem satisfied, bags continue to be holding up nicely, went to TNT gymnastics.
April 8 - appointment today with pediatrician, you weigh 7lbs 8oz now, you look great and are ready for surgery.
April 9 - continues to do well, eating and sleeping as expected, we went on some errands to Walmart and then got Tutti Frutti for a treat.
April 10 - first time to church, both morning and evening services.
Apri 11 - got to the hospital at 6:30 am, surgery was at 8:30am, you couldn't eat after midnight and we were able to give you some Pedialyte to hold you over, you drank about 130 mLs, surgery ended at 12:30pm and all went well, there were no new concerns, you struggled in the recovery room and after with pain, you were arching your back and neck and laying on our side, you are in room 480 in the PICU, you have been given morphine hourly, they were about to give you a catheter to help you pee since you hadn't - but then as they were getting you ready to do the catheter you peed, you started resting more comfortably and we felt much better once we left for the night, over night they only gave you 2 doses of morphine and along with the tylenol ever so often.
April 12 - resting fairly comfortable, pulled your NG tube out 3 times last night and then again this morning, was moved to General Peds room 487, TPN's and lipped's (nutrition by IV) will be starting today,
April 13- he pooped!!!!!- twice- everyone was shocked, little is coming out of NG tube, mom got to hold him again
April 14- NG tube out, 7lbs 12oz!
April 15- started eating 5 mLs every 3 hours, unsatisfied, getting Tylenol through mouth -and loves it
April 16- up to 10mLs every 3 hours, hard day, cranky, got his crib mobile, IV nutrients have decreased
April 17- 8lbs 6oz, 15 mLs every 3 hours, labs came back great, incision is completely cleared- everything off it
April 18- 8lbs 2.8oz - lost weight due to TPN's cut in half, 20 mLs and then up 5mLs every 12 hrs,
April 19- 8lbs 6oz, 5mLs up every 3 feeds, stool looking great - yellowish/orange, enjoying his mobile,
April 20- 8lbs 7.7oz, finished with TPN and Lipped's, 45mLs and then every other feed he gets 5mLs more, 50th day of life,
April 21- 8lbs 4.2oz - lost weight due to TPN's done, up to full feeds (70mLs), first blowout today,
April 22 - 8lbs 8oz, He had the CF test redone and then HE CAME HOME!!!!!!! For good, Lord willing!
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